These leaflets, with an accompanying video, present some of the findings from a 3-year study carried out with 15 families in Scotland with motor neurone disease. Joan Murphy examined the communication of people with motor neurone disease and their closest communication partners in their own homes as the disease progressed.

The leaflets include suggestions to help communication relating to 3 areas:

Strategies that help communication - The participants in the study were keen to discuss their communication strategies and share them with others
Augmentative and alternative communication -Technology is not without problems but given appropriate support, people may be able to use AAC, both low and high tech, more effectively
The environment - simple changes to the environment can make a huge difference to a person's ability to communicate.

The video, made in collaboration with 2 people with MND, illustrates some of these issues.

The research for this package was funded by the Scottish MND Association and the Community Fund with support from Forth Valley Primary Care Trust. The pack costs £20 (inclusive of VAT).

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