Join the twitter chat exploring the recommendations of the Citizen’s Jury for people with intellectual disabilities and need for inclusive research practices In 2018 the Scottish Learning Disabilities Observatory and Talking Mats were funded by the Wellcome Trust to set up a Citizens’ Jury for people with learning/intellectual disabilities. We wanted to develop and test an adapted method of deliberative democracy, and hopefully to demonstrate that people with learning/intellectual disabilities can consider complex questions relating to health research. We also wanted to show that with resources, planning and good quality facilitation this could lead to valuable insights into inclusive research.
After a period of knowledge and skills development with our citizens’ jury members we held the jury over 5 days at the end of 2019. In early 2020 the Jury published their consensus report containing 10 recommendations for health research. You can watch a video the jury members made to communicate the recommendations here: Research Voices Citizens’ Jury: Our recommendations Involving People with Learning Disabilities – YouTube We believe that this report provides crucial insights into how people with learning/intellectual disabilities want to have their voices heard when it comes to health research. The next stage for us and the jury members is to secure further funding to build on this work and take forward the jury’s recommendations.
Through the Research Voices project we wanted to share our learning and develop resources that could be shared with the research community. Our evaluation report provides a detailed review of the Research Voices project with comprehensive information about the jury process and outcomes. There is an easy read version available.
On Tuesday the 8th of June we will host a twitter chat about inclusive health research from 7pm – 8p.m . We hope to welcome researchers, self-advocates, third sector organisations, carers and others to contribute to this discussion. If you have never joined a twitter chat before this is your opportunity. Here is how:
At 7p.m on the 8th June go to twitter search on the hashtag #researchvoices.
The first thing will be introductions – people can say who they are and where they come When you respond in a twitter chat always use the hashtag of the chat, in this case, #researchvoices. Using the hashtag allows everyone to see the conversation.
Then we will post question 1 – when you respond to a question start with the question number e.g. Q1 but still remember to use the hashtag #researchvoices
Later on question 2 and question 3 will be posted. To respond put Q2 or Q3 and the hashtag #researchvoices
You can either respond directly to the questions or respond to the comments that other people have posed by saying what you liked or by asking them another question. Remember still use the hashtag #researchvoices in your response.
Sometimes people just want to observe the conversation. That’s fine too but remember you can join in the conversation at anytime
We look forward to seeing you on the 8th of June for this important twitter chat to share ideas and good practice
Q1 How do the recommendations of the citizens Jury align with current research practice, what changes will you make to implement them, and what are the barriers to implementation?
Q2 What does successful inclusive practice look like to you – share your top tips for promoting inclusive research?
Q3 Inclusive research builds skills, expectations and connections with researchers with learning disabilities. Does the research community have responsibility for maintaining this long term and if so how?
A new report with a focus on children’s participation will launch on Thursday, 10th December. John Swinney, Depute first minister of Scotland said that “The UNCRC (Incorporation) (Scotland) Bill will revolutionise the way we listen to children and take their rights into account”
In 2018, the first review of ‘Ready to Act’ took place: a plan with bold ambitions and a key focus on child participation. Around the same time the Scottish Government was making plans to incorporate UNCRC into law.In preparation for this, the Chief Allied Health Professions Officer, approved project funding for Talking Mats Social enterprise to investigate what was happening across our services in Health, Education and the Third sector.The question we focused on was‘How much did practitioners understand about the obligations of UNCRC Article 12 and what were they doing to ensure child participation?’.
We chose 3 services who were already committed to upholding children’s rights. We wanted to share good practice and identify areas requiring further support.
Indigo childcare, a Glasgow based social enterprise. They support families with children from birth up to the age of 16yrs.They provide a platform for improved life chances for young people.
Langlees Primary school in Falkirk was working towards a Gold Rights Respecting Schools Awards and has an explicit focus on pupil wellbeing.
Children and Young People’s Occupational Therapists – Fife Health & Social Care Partnership were focussing on increasing the involvement of children and young people in therapy decisions.
Practitioners were trained in how to use Talking Mats. Over three months they were asked to give children and young people a space to share their views.We gathered all the learning and asked the children about how they felt. The overwhelming comment was “It was nice to be listened to” Many practitioners reflected that when CYP are given theopportunity to voice their opinions and are supported to come up with their own solutions, real change happens.
I’m sure John Swinney is right, one thing that will revolutionise our practice is by ensuring our services adhere to the three UNCRC core principles of Dignity, Equality and Respect. We can then incorporate those shared values to give space, voice, audience and influence to the views of our children and young people and that will radically change our approach.We are delighted that this report called Can Scotland Brave will launch on Human Rights Day, Thursday 10/12/20 .
Discuss the report and celebrate with us at our Twitter Chat from 7.30-8.30pm. Watch this space for our second blog which will include more information about the chat.
Our first Talking Mats advanced online module has launched. We are pleased we had developed our online foundation training well before lockdown. There has been such great feedback from people who have completed our online foundation course and they have been asking for more. They like the bite size chunks, being able to pace their own learning and the reflective practice approach. Now we are adding to our online course with an advanced Talking Mats module focusing on Talking Mats use in safeguarding. This course is structured around the Talking Mats Keeping Safe resource and how to use it.
The Keeping Safe Talking Mats resource was developed to check in with people and find out how their lives are going. It uses a holistic framework to do this and the conversation it supports is structured around three topics: 1) well-being; 2) relationships; 3) thoughts and feelings. The resource was trialled and tested in projects involving over 700 practitioners. Originally, it was designed for people with learning disabilities but feedback has been that it has been helpful with a wide range of people including, those with stroke, head injury, dementia and mental health issues.
The advanced online module involves 2 to 3 hours of learning that you do at your own time and pace. It involves short talks, reading, videos and reflective practice activities. You will develop confidence in using the resource as well as an understanding of relevant issues, such as diagnostic overshadowing, developing the capacity of individuals to raise concerns, the impact of trauma. You will be encouraged to reflect on how you can apply the Talking Mats Keeping Safe resource to your own area of practice
To apply for the course, you must have completed your foundation Talking Mats training. If you haven’t completed this training book now – there is still the reduced price training offer if you book your place before the end of August 2020. Access to this advanced course will begin on the first of every month and you will have the full month to complete it.
Book your place now. The cost is £85 for the course and the Keeping Safe resource and £35 if you already have your Keeping Safe resource and just want to do the training.