Category Archives: Aphasia

Let pictures talk

german app in action

Grateful thanks to Prof. Dr. Norina Lauer, OTH Regensburg – University of Applied Sciences, Germany for this blog.

At the conference of the German Society for Aphasia Research and Treatment (GAB) from the 1st to the 3rd of November Franziska Rau presented a poster – Let pictures talk – about her bachelor thesis on Talking Mats.

2018 TalkingMats – Germany

Speech and language therapists from German-speaking countries meet at this conference to present their latest research findings. This year’s theme was ” Aphasia Therapy Digital”.
The presented bachelor thesis about Talking Mats was performed at the HAN University of Applied Sciences, Netherlands, and was written by Franziska Rau together with Karoline Bitter and Lara Stobrawe. The students asked 29 people with aphasia and 63 people without aphasia for how representative they rated the images and terms used in the Communication section of the Digital Talking Mats Health & Well-being resource. While the healthy persons judged many items as not clear enough, the people with aphasia estimated significantly more pictures and names as appropriate. For this purpose, various reasons have been discussed, such as the possibility that the persons with aphasia directly perceived the pictures and terms as aids, while healthy persons judged more critically on the basis of the task. But also problems of concentration or comprehension in people with aphasia would be causally conceivable. This should be examined in further studies.
The poster was presented as part of a poster session and was well received by the audience. Thanks to Franziska, Karoline and Lara for their great study and to Holger Grötzbach, Janine Coopmans and Xaver Koch who supported the students.

We are always happy to receive projects and posters from anyone studying how Talking Mats can be used

German Digital Talking Mats with people with aphasia

German TM Workshop

We are very grateful to Elena Maxheimer, a Speech and Language Therapy student from Germany, for sending us this blog of a summary of her thesis which examined the use of the German Digital Talking Mats with people with aphasia.

In May 2018 I did my bachelor thesis on the German version of the Talking Mats app. Under the consultation of Prof. Dr. Norina Lauer, I delivered two workshops for eight people with aphasia. In these workshops the participants practiced doing Talking Mats and afterwards they evaluated the app by filling out a short questionnaire and taking part in a focus group in which they discussed the app’s content and practical use.

The participants generally rated the app as useful for people with aphasia and in particular, the topics, pictures and terms were rated as suitable for people with aphasia. The two most chosen topics were Health and Communication. Some aspects were difficult for people with aphasia. Some of the group had problems in choosing a suitable scale, writing on an empty card or writing down comments.

Suggestions for modification were
– Showing two sessions of Talking Mats parallel to have a better comparison
– Using the app on the smartphone – however the screen on a smartphone is too small to be manageable
– Saving the login data, so you don’t have to login every time you use the app
– One older participant suggested additional topics about specific diseases such as diabetes
– Another younger participant wanted more about sex, feelings, sympathy and love.

For other information about Talking Mats in Germany click here
Also Joan Murphy and Norina Lauer will be running a Talking Mats workshop in Cologne on May 5th and 6th 2019

Self-management for people with long term conditions

DTM Jean and David

Self-management for people with long term conditions (LTC) is now a key government strategy to encourage people to take responsibility for their own health, behaviour and well-being. Talking Mats received funding from The Health and Social Care Alliance Scotland to look how using the Digital Talking Mats (DTM) can help people with LTCs to manage their health and well-being and to recognise their own strengths and abilities.

The overall aim of our project was to empower people with different long term conditions, to manage their own health and well-being. Through using Digital Talking Mats (DTM) we hoped that participants would be able to have more control over their lives and have improved communication with families and professionals.

There were a total of 28 participants in this project living with one of three different long term health conditions – stroke, dementia and learning disability. Each participant had access to a tablet device and was given a personal DTM licence which gave them access to 13 topics in the Talking Mats Health and Well-being resource. We visited each participant at home and taught them how to use it and asked them to complete and send us at least 1 digital mat per week for 6 weeks on any topic they wished. The design of the digital Talking Mat allowed them to email their mats directly to the researchers. We visited each participant a second time to discuss on how easy it was to use the digital Talking Mats and their views on their completed mats. We asked those who wished to, to continue sending us completed mats beyond the initial 6 weeks. We visited them again in 6 months to discuss how they were managing.
15 participants completed all 6 mats and 12 participants continued to complete mats over the length of the project. Participants completed 235 digital mats across all 13 topics

There were 3 particularly significant findings

1. At 18 months the participants living with dementia actually felt their well-being had improved, despite dementia being a progressive illness.
2. For the participants living with stroke the results were even more striking as 95% felt things were going well at the end of the project in comparison with 47% at the beginning.
3. At the end of the project the percentage of people with learning disability who felt things were not going well had reduced from 19% to 10%. Furthermore the percentage of people indicating that they were not sure about their views had increased from 27% to 42%. There can be a tendency for people with learning disability when using Talking Mats, to express their views at either end of the mat and to rarely use the mid- point. However being able to use the unsure mid- point is noteworthy as it indicates that the participants in the project realised that they could express their views not only as black or white but could indicate that they were unsure. This awareness opens up the potential for people to express views more thoughtfully with opportunities for further exploration.

Here are three examples of how using the DTM supported people to self-manage situations in their lives. Click on image to enlarge.

DTM stories

As well as helping participants self-manage their long term conditions, an unexpected outcome of this project is that many people found that using the DTM helped them see the positive things in their life and not just the negative. It also highlighted that despite having a long term condition and, for many also a deteriorating one, that things were not getting worse.

Click here for full report including 6,12 and 18 month reports to the funders  20180717 Alliance full report

Click here for the summary report 20180717 Alliance Final Short Report

Click here for a video link of 2 participants

Talking Mats in Germany

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Talking Mats in Germany is being extended by one of our trainers Professor Norina Lauer.  Here she describes two of her current interesting  projects and we look forward to reading her findings.

 

The German version of the Talking Mats app will now be tested in two more projects in the west of Germany. As the communication symbols were developed for English-speaking clients six German SLT students of the Hogeschool van Arnhem en Nijmegen (han) in the Netherlands want to find out if the words and symbols fit to German clients and their cultural background. Because of cultural differences between Scotland and Germany it is necessary not only to adapt the language but also check the icons.

One of the projects will be conducted with children between the ages of 8 and 10 years. The children will be asked to classify the symbols from their age-group. The question will be whether the symbols and words are relevant for the situation of German children. If not, they will be asked for possible alternatives.

The other project focuses on adults. One group of people with aphasia and one group of healthy persons will be tested. Every tested person scores the 57 icons concerning their correspondence with the words written down below by using a scale from 0 to 3. In addition, possible graphic alternatives will be enquired and collected. The two groups of adults will be used to determine if there is a significant difference between the obtained results from each group.

 

Care Opinion’s Picture Supported Stories

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Talking Mats were delighted to be involved in the launch of Care Opinion’s Picture Supported stories at the Life Changes Trust Gathering in Perth Scotland this week. We have been working with Care Opinion for the past two years to develop this feature.  This earlier Talking Mats blog describes the development process and this recent Care Opinion blog gives some examples of the feature in use.

However, in this blog,  I want to reflect on two events I went to within a short space of time; the gathering in Perth on Monday and the Royal College of Speech and Language  Therapists study day the previous thursday in Stirling . It felt to me like my two worlds colliding or maybe it was just my stars aligning ! At the RCSLT study there was a session on the public perception of Speech and Language therapy and how there is still much work to do in changing the myths that are spun and repeated about what Speech and Language therapists actually do . For as John F Kennedy said in 1962 ‘ the great enemy of truth is very often not the lie but the myth , persistent, persuasive and unrealistic ´ The  National  Allied Health Professional  children’s lead, Pauline  Beirne suggested to the study day that Care Opinion is a great web site for encouraging that sharing of stories. Then, strangely when I got back into the office there was a story waiting for me in my in box all about the positive experience of a parent involved in a Hanen programme in NHS Lanarkshire  which reinforced that very message.

We know people relate to stories, stories resonate and have impact, they are easy to remember .  Our drive in working in partnership with Care opinion was to support more people to tell their health and care stories  by increasing accessibility . It was designed with and for people with dementia   through funding from Life Changes Trust but anyone can use it and they are! It is great to see the stories coming in.

Through stories let’s celebrate the good, develop and improve practice and let’s use stories to challenge myths and educate. So use Care Opinion and try out the  picture supported stories to share your experiences , tell other people ,spread the word and the picture supported story feature  !